Relationships between patients’ organizations and the pharmaceutical industry can result in distorted information about treatment effects
To contribute effectively, patients need better general knowledge about research and readier access to impartial information
There is no one ‘right way’ of achieving collaborative participation in research
Patient participation should be appropriate for the specific research purpose
Methods of involving patients are continually evolving
Introduction
In the preceding sections we have shown how much time, money, and effort can be wasted in doing bad or unnecessary research into the effects of treatments – research that does not, and never will, answer questions that matter to patients. We hope we have convinced you that better testing of treatments in the future should come from productive partnerships between patients, clinicians, the public, and researchers.
GET-IT provides plain language definitions of health research terms
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